Thursday, October 13, 2011
Growth Hormone Stimulation Test
Trig had his stimulation test! I was so incredibly worried but he did so well. He was amazing.
We got there and they put emla cream on a few spots on his arms to make his skin numb for the IV. After he was numb, they put the IV in and gave him a shot of glucagon. He didn't like the shot but got over it quickly. I was worried about being on my own with him while all of this was going on but he did really well. He had blood draws every half hour for 180 minutes (3 hours). Cindy got there after she took Grayson to Mothers Day Out (thank you!) and Trig loved that Mimi was there. She brought a bunch of hot wheels that were Baker's when he was a kid. He lined them all up on the floor, and when he was done, he would line up the cars once again in a different line in an angle to the first line. We went back and forth to another procedure room with a fish tank in it. We read books. We played with Baker's iPad. He dropped his glucose level a bit and started acting woozy so one of the docs came and talked to us. He was really nice and told us a little bit more about the test and kind of reassured me that we would find a way to get Trig his growth hormone. That really was a relief to me. And then before we knew it, 3 hours had passed.
Trig was amazing. During his many blood draws, he sat very still and watched the blood fill the syringe. We called it "seeing red". Today he even said "go to the doctor and see red!". We keep asking him if he would go back to the doctor and he said "yeah". So I hope he is okay with going back on November 1st!
We got there and they put emla cream on a few spots on his arms to make his skin numb for the IV. After he was numb, they put the IV in and gave him a shot of glucagon. He didn't like the shot but got over it quickly. I was worried about being on my own with him while all of this was going on but he did really well. He had blood draws every half hour for 180 minutes (3 hours). Cindy got there after she took Grayson to Mothers Day Out (thank you!) and Trig loved that Mimi was there. She brought a bunch of hot wheels that were Baker's when he was a kid. He lined them all up on the floor, and when he was done, he would line up the cars once again in a different line in an angle to the first line. We went back and forth to another procedure room with a fish tank in it. We read books. We played with Baker's iPad. He dropped his glucose level a bit and started acting woozy so one of the docs came and talked to us. He was really nice and told us a little bit more about the test and kind of reassured me that we would find a way to get Trig his growth hormone. That really was a relief to me. And then before we knew it, 3 hours had passed.
Trig was amazing. During his many blood draws, he sat very still and watched the blood fill the syringe. We called it "seeing red". Today he even said "go to the doctor and see red!". We keep asking him if he would go back to the doctor and he said "yeah". So I hope he is okay with going back on November 1st!
Sunday, October 2, 2011
First Words
Grayson says a few words now! His first one was "thank you" (???) and now he says "light" when you turn the light on and "juice" - he LOVES juice and will do anything to get it and carry it around in his mouth while he crawls.
No sign at all of walking. Seems like he is on the same track as his brother in terms of walking. At least to this point he is. Just like his brother, I believe he is capable of standing and walking but he refuses to do it. Even when I take his hands and walk with him he picks his feet up and refuses to do it. I am perfectly fine with it, he will walk when he feels like it, but just like his brother, I think he is also frustrated and does want to walk but won't try. It surprises me a bit that he's not interested in walking since he wants to do everything that his brother does. Hm, wonder when he will walk.
One of my current favorite things that he does is clap to "If you're happy and you know it". I think he is a smart cookie to know that the song is telling him to clap.
Trig had a setback in his growth hormone treatment - our insurance denied it, saying that they don't cover SGA (small for gestational age). So the doctor is going to try a new approach - a growth hormone stimulation test. Trig has to go in and have an IV placed and given several drugs to stimulate growth hormone production. I am hoping that this goes well and I hate that Trig will have to go through this. He is a tough little boy though. So he actually has two rounds of this - one next week and one in November. Boo. But hopefully we get the results we need in order for Trig to get his growth hormone.
Trig seems to be getting a little better at tolerating his little brother. I think it is better every day. He is okay with him unless he is mad - in which case he seems to want to take it out on his brother. He just doesn't understand how to channel his anger properly and I guess that describes most two year olds, right?
Baker is doing well - busy busy but he seems to be enjoying his work. When people hear about his schedule they wonder how I do it - being alone so much. And of course also wonder how Baker does it working so much. I think that things are so much better than they were last year that I am actually happy with how much I see him. It's better than it used to be for sure!
I am okay - I have been through a bit of a hard time lately but I am doing better. And to quote Forrest Gump - "That's all I've got to say about that."
Up ahead we have my birthday on the 24th (ack! I'll be 31!) Halloween on the 31st (one of my favorite holidays, if you can call it that) during which Baker has a week off! No particular plans, just hanging out together, but I am sure that we'll do some fun activities with the kids. I have some fun plans coming up with my Alliance group - love those ladies!!!
One of the fun things I am dealing with is a ganglion cyst - basically an area of inflammation on my wrist. It really hurts and I am going to see a doctor but I can't get in until early November. So frustrating. But hopefully I will get it taken care of soon after that. I had the same thing a few years ago and I had it removed. No big deal.
That's about it for now!
No sign at all of walking. Seems like he is on the same track as his brother in terms of walking. At least to this point he is. Just like his brother, I believe he is capable of standing and walking but he refuses to do it. Even when I take his hands and walk with him he picks his feet up and refuses to do it. I am perfectly fine with it, he will walk when he feels like it, but just like his brother, I think he is also frustrated and does want to walk but won't try. It surprises me a bit that he's not interested in walking since he wants to do everything that his brother does. Hm, wonder when he will walk.
One of my current favorite things that he does is clap to "If you're happy and you know it". I think he is a smart cookie to know that the song is telling him to clap.
Trig had a setback in his growth hormone treatment - our insurance denied it, saying that they don't cover SGA (small for gestational age). So the doctor is going to try a new approach - a growth hormone stimulation test. Trig has to go in and have an IV placed and given several drugs to stimulate growth hormone production. I am hoping that this goes well and I hate that Trig will have to go through this. He is a tough little boy though. So he actually has two rounds of this - one next week and one in November. Boo. But hopefully we get the results we need in order for Trig to get his growth hormone.
Trig seems to be getting a little better at tolerating his little brother. I think it is better every day. He is okay with him unless he is mad - in which case he seems to want to take it out on his brother. He just doesn't understand how to channel his anger properly and I guess that describes most two year olds, right?
Baker is doing well - busy busy but he seems to be enjoying his work. When people hear about his schedule they wonder how I do it - being alone so much. And of course also wonder how Baker does it working so much. I think that things are so much better than they were last year that I am actually happy with how much I see him. It's better than it used to be for sure!
I am okay - I have been through a bit of a hard time lately but I am doing better. And to quote Forrest Gump - "That's all I've got to say about that."
Up ahead we have my birthday on the 24th (ack! I'll be 31!) Halloween on the 31st (one of my favorite holidays, if you can call it that) during which Baker has a week off! No particular plans, just hanging out together, but I am sure that we'll do some fun activities with the kids. I have some fun plans coming up with my Alliance group - love those ladies!!!
One of the fun things I am dealing with is a ganglion cyst - basically an area of inflammation on my wrist. It really hurts and I am going to see a doctor but I can't get in until early November. So frustrating. But hopefully I will get it taken care of soon after that. I had the same thing a few years ago and I had it removed. No big deal.
That's about it for now!
Sunday, August 28, 2011
Friday, July 29, 2011
Wednesday, July 27, 2011
GROWTH HORMONE!
Well we saw the pediatric endocrinologist last week and he is recommending that Trig start growth hormone! We are very excited but also nervous about giving Trig daily injections. It will be interesting to say the least! We are very happy that Trig will have a real shot at being a normal sized adult now. It is very very good news. He was projected by the doctor to be 4'10" without treatment, and now he can grow to much bigger - we really have no idea how the treatment will affect him. Now we just await insurance approval and go from there. He will hopefully start treatment in a few weeks, as soon as insurance comes through and they can ship us the meds.
In house news, things are moving along. We got a check from the insurance company but it is not the full amount so we are waiting for a "supplemental check" to cover the rest. Roland has painted the living room and kitchen - we are going with a darker yellowish brownish color in the living room and a "light olive" color in the kitchen. It looks very nice, I think, but of course I am no interior designer. I think it will look really nice when we get all of the furniture and pictures in the room. They ripped out the cabinets and the wood floors should be going in soon. We are also putting in a new sink and granite countertops, YAY! Hopefully it shouldn't take too much longer because we are currently staying with the Kings and although it is a fun adventure, we are ready to be in our own house again.
Grayson will be 1 in just over a week. I can't believe my baby boy is going to be a year old.
That's about all that's going on here for now!
In house news, things are moving along. We got a check from the insurance company but it is not the full amount so we are waiting for a "supplemental check" to cover the rest. Roland has painted the living room and kitchen - we are going with a darker yellowish brownish color in the living room and a "light olive" color in the kitchen. It looks very nice, I think, but of course I am no interior designer. I think it will look really nice when we get all of the furniture and pictures in the room. They ripped out the cabinets and the wood floors should be going in soon. We are also putting in a new sink and granite countertops, YAY! Hopefully it shouldn't take too much longer because we are currently staying with the Kings and although it is a fun adventure, we are ready to be in our own house again.
Grayson will be 1 in just over a week. I can't believe my baby boy is going to be a year old.
That's about all that's going on here for now!
Thursday, July 14, 2011
HOUSE FLOOD
So our house flooded on the 4th of July. It's insanity. So I haven't been good about the blog. Must catch up!
We are doing our very best to get to the pool as much as we can. It's too hot to take walks in the afternoon like we used to so we head to the pool when Daddy comes home whenever possible! Baker is still enjoying anesthesia and it's so great to see him so happy.
So the house flood - yeah we had 1-2 inches of water in our kitchen/dining room as a result of our water spout on the refrigerator running ALL NIGHT. You know that spout that you get drinking water from? Well I woke up on July 4th and I smelled a weird smell and could hear water running. Walked into the kitchen and all of this water coming from the drinking spout. Craziness! Turns out that there was a short in the fridge (LIKE A BIG ONE that caused a small fire!) so we had to scrap the fridge and get a new one. Thank goodness for insurance because we had water removal people come out right away and they cut a good foot of sheetrock out of the kitchen and dining room, pulled up all of the baseboards, and pulled up a good portion of our wood floors (our whole wood floor has to be replaced). They also left lots of loud blue dryers. Luckily those are gone now because the kids were both scared of them.
So at this point we are waiting for an estimate from an adjuster and we'll have Roland start on the work as soon as he can. He's going to come by soon and give his own estimate and we'll see how they match up. SO crazy. This is one of the crazier things that has happened to me for sure.
That project is all-consuming so I am trying to manage all of that plus being a mom, housekeeper, and wife which was tiring enough by itself. I am trying to maintain perspective, though. We were told that the short could have very well burned the house down so I am thankful that we are all okay and the house is still standing. And at least we have my wonderful in laws to live with when we have to move out while this is all going on.
Oh and guess what - Trig finally sees the endocrinologist next week. I am SO NERVOUS about it. Either outcome - growth hormone or not - comes with it's own concerns. No growth hormone = no growth. I am hoping that if he doesn't qualify that he will continue to monitor his progress and see if he qualifies. If he DOES qualify, I will be very happy but very concerned about giving him a daily injection. Yikes.
So that's the news in this neck of the woods. Now back to your regularly scheduled programming :)
We are doing our very best to get to the pool as much as we can. It's too hot to take walks in the afternoon like we used to so we head to the pool when Daddy comes home whenever possible! Baker is still enjoying anesthesia and it's so great to see him so happy.
So the house flood - yeah we had 1-2 inches of water in our kitchen/dining room as a result of our water spout on the refrigerator running ALL NIGHT. You know that spout that you get drinking water from? Well I woke up on July 4th and I smelled a weird smell and could hear water running. Walked into the kitchen and all of this water coming from the drinking spout. Craziness! Turns out that there was a short in the fridge (LIKE A BIG ONE that caused a small fire!) so we had to scrap the fridge and get a new one. Thank goodness for insurance because we had water removal people come out right away and they cut a good foot of sheetrock out of the kitchen and dining room, pulled up all of the baseboards, and pulled up a good portion of our wood floors (our whole wood floor has to be replaced). They also left lots of loud blue dryers. Luckily those are gone now because the kids were both scared of them.
So at this point we are waiting for an estimate from an adjuster and we'll have Roland start on the work as soon as he can. He's going to come by soon and give his own estimate and we'll see how they match up. SO crazy. This is one of the crazier things that has happened to me for sure.
That project is all-consuming so I am trying to manage all of that plus being a mom, housekeeper, and wife which was tiring enough by itself. I am trying to maintain perspective, though. We were told that the short could have very well burned the house down so I am thankful that we are all okay and the house is still standing. And at least we have my wonderful in laws to live with when we have to move out while this is all going on.
Oh and guess what - Trig finally sees the endocrinologist next week. I am SO NERVOUS about it. Either outcome - growth hormone or not - comes with it's own concerns. No growth hormone = no growth. I am hoping that if he doesn't qualify that he will continue to monitor his progress and see if he qualifies. If he DOES qualify, I will be very happy but very concerned about giving him a daily injection. Yikes.
So that's the news in this neck of the woods. Now back to your regularly scheduled programming :)
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